Cycle Five - On Wednesday, April 22, Gloria received the Phesgo shot, which marked the start of her fifth cycle. The next day, she began her round of 16 radiation treatments - somehow we had misunderstood and thought there were 15 of those.
As usual, I began writing this update with the bits and bobs of all the things she has been up to, but you know what? It’s boring!
The purpose of all this current drivel was to illustrate that Gloria is no longer spending her days oscillating between "the head"
(toilet) and the bed! Her life has been slowly resuming a certain normalcy, although the weeks still contained way too much medical stuff for
our liking - necessary, but too much.
A while back, she lamented she wanted her body back. Then she proclaimed she wanted her life back.
Well, it is resuming!
On Thursday, May 14, Gloria had her last radiation treatment. Great people, but glad to be done with that!
Gretchen and LeAnn help Gloria into position guided
by the laser lines and tattooed
dots on her body
Gloria's weight has been slowly rising - up to a whopping 118.6 lbs. She needs about 15 more. She is slowly losing the ability to
compete in a Gollum look-alike contest. Her once-shiny knob has acquired a frosting ... with the cutest little tuft in the back.
On Wednesday, May 20, she had her start-of-cycle-six Phesgo shot. There were minimal side effects this time.
The day before, we met with Dr. Koeneke. We spent much of the time talking about his family's recent vacation in Costa Rica - a place
Gloria spent two years.
The long-term plan is to keep her on the Phesgo shots until she has had a total of 14 or until some reaction occurs indicating she can no
longer tolerate them. At that point, she'll go on an estrogen-suppression pill for maybe 5 years.
SOZO - The one new medical experience this period was particularly painful - not the item itself, but getting up at 7:40 a.m. on
a Monday to make the 9:30 a.m. appointment. Gloria has never been bad about getting up early - even in the very wee hours to catch a
6 a.m. flight to Wisconsin - but she just holds her tongue.
And that appointment - are you ready for this? - was at Maximum Performance Physical Therapy and Fitness. No, she isn't starting a fitness
program. Stephanie, one of the co-owners, has long had an interest in the intersection of how to stay fit and healthy while undergoing
treatment for cancer. We were sent in her direction by Dr. Bell, the radiation guru. People who have had the sort of treatments Gloria has
had are at an elevated risk of developing lymphedema as a consequence of damage to her lymph circulation system.
Once again, the "Catch 22" aspect of cancer treatment medicine raises its head! Radiation of the lymph nodes will likely kill off the
cancer cells that may have traveled there from the breast, but the unintended scarring combined with node removals may interfere with
lymph flow. The consequence may be a pooling in the related area - in this case, her right side upper arm near the shoulder. While it
is unsightly, morbidity of the tissue may arise, followed by an infection. Other than the use of compression bandages and
massage, there is little that can be done. Additional surgery may produce relief in some cases, but it is generally viewed as incurable.
Dr. Bell is a fan of surgically removing more area lymph nodes in an effort to rid an area of cancer, but Dr. Doering is not, feeling
the amount present in Gloria's case was small and radiation and chemotherapy would likely sweep them up. The greater number of nodes
removed, the heightened likelihood of lymphedema. Once again, it's another roll-the-dice situation - which would a person rather take
the chance on?
The "magic number" of node removals where lymphedema reaches a certainty of 50-50 is considered six. Since Gloria had only one removed
and tolerated radiation well in 2022, she should be in a good place.
But if her favorable odds regarding lymphedema do not hold, the next best thing is to get a heads-up early when it begins developing
because the treatments are more effective. Less than a decade ago, the only way to evaluate lymphedema of the arm was to measure the
circumference of both arms with a tape measure at various points. These are then compared and if the differences are great enough, the
patient has it! But this method has a number of drawbacks - such as the assumption that only one side was afflicted - and is inclined
to arrive at a positive diagnosis when the situation is already somewhat advanced.
I fully expected when I completed the discussion of how Phesgo operates, that I had covered all the bases on the "heavy" science front.
Little did I know then that a boring topic like lymphedema would introduce me to a fancy electrical machine - the SOZO. To be candid,
it initially sounded like a snake-oil story. But as Stephanie explained the basics, she used several technical terms that people even
in my arena often flub. One of my favorite things used to be going into places like Best Buy and wait for a salesman to expose his lack
of knowledge by using terms incorrectly.
But Stephanie was spot on, prompting me to investigate further. I first discovered it was approved by the Food and Drug Administration
- a positive sign. Then there was the discovery of the operator's manual with a lot of good technical stuff. It's really a tale of a
pretty cool device.
Gloria on the SOZO
I decided I will put that in a later separate post. I am pretty certain most folks skip all the science stuff I include anyway!
Update Future - I’ve decided this will be the last "regular" or planned update.
Closing Thought and a Question - When a person is young, medical interventions are typically aimed at a return to "normalcy."
As we age, it is common to develop a small number of "maintenance" medical interactions - Pap smears, blood pressure medication, etc.
But if we are lucky enough to reach old age, our awareness of where this is all going becomes more of a constant companion. Some may
find this depressing, but I don't. It's just another phase of life with its own peculiar benefits and challenges.
However, there is a question we two have been pondering. One of the things that has changed during our life is advertising for legal
services and drugs. Once upon a time, neither was allowed. But with the amount on the airwaves today, I wonder how television ever
survived without it!
Personally, I find the ads for law firms quite entertaining. In almost every case after watching one, I know if I needed a lawyer,
he/she would NOT be my choice.
But our question involves cancer treatment drugs. The next time you see an ad for one, notice how many of the people who are supposed to
be cancer patients are bald. In the real world, approximately two out of every three cancer patients lose their hair from the drugs.
For that matter, about half of men experience baldness as they age just as the consequence of having the Y chromosome. So why are
baldies virtually nonexistent in the related ads? Not exactly truth in advertising, is it?
Frosting with a tuft
Art's daughter Karen visits
Who is grandma's Number 1?
Random Wrap-up -
We needed a new mattress for years, but eventually Art's back was complaining so much that we did the deed.
What was once just random fuzz has now become an almost-head covering. I love the little "tuft," but Gloria is less amused.
When ... maybe I should say "if" ... you complete your radiation therapy, they have a little ceremony. The patient gets a
certificate and a pull on the bell cord. Adam on the left and Gretchen on the right.
The other photos are meeting with friends and family, either for a visit or a meal.
Supper with Susan and David
The mattress arrives
Radiation graduation
Friends Kay and Susan visit